Things haven't gotten better. Apparently the window of opportunity had damn near closed last night when they intubated him. The swelling was much worse than they had originally thought. His c02 was over 120 and he had exhausted himself trying to breathe.
They had a pinhole sized opening to work with but were able to get a tube in. THANK GOD ! The swelling has only gotten worse and according to the team they believe it will continue getting worse over the next couple of days.
To make matters worse, the drugs they are giving him allowed him to occassionally wake up. Once awake he was combative and crazy. They were so worried that he would rip the tube out and then they wouldn't be able to get it back in and would have to put in a trache. They've upped his meds to keep him paralyzed. They won't leave him alone in his room even for a minute so that if he wakes up there is someone there to quickly administer more drugs to settle him down.
They seem to think that he'll be sedated and intubated for the next few days. I'm just hoping for a bounce back recovery. We all know kids can do it. I'm praying mine is no exception.
They just placed an NG tube this afternoon and questioned whether or not it's placement was in his small intestines but after considering the trauma of taking it out and repeating the procedure they just decided to feed him into his stomach. Hopefully his feeds are less dramatic than everything else up to this point.
Munchausen mom ? forget about it. I thought it would be fun to hang out in a hospital all day and be with one child. (or at least I joked about it) OMG no way. Even with my one child completely sedated......a relaxing vacation this is NOT ! I want my spunky little monkey back to scaling the counters and walls at home. I miss his smile and even his strong and forceful cry.
He has a sign hanging in his room that says critical airway. I thought he was just going to need some IV antibiotics for a few days. When did this all go so wrong ?
**I just called to say goodnight to Syd (she's the only one struggling to go to bed)
She asked me how long Nathan would be sleeping....I said, maybe for a couple of more days. She then said, "When Nathan wakes up tell him that his Sydney loves him"
Is that the sweetest thing ever or WHAT. That's all I have to say. I just want to always remember what a sweetheart she is.**
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